Tag Archives: epilepsy

Purple Day

Saturday 26th March was Purple Day, when Epilepsy Connections’ volunteers were out in force at the Falkirk vs Raith Rovers match to get everyone talking about epilepsy.
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Give epilepsy a sporting chance

Cathy with 'Give epilepsy a sporting chance' card during National Epilepsy Week (13-19 June)

Falkirk East MSP Cathy Peattie is calling for people with epilepsy to be given a sporting chance.
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Epilepsy Week

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The photograph shows Cathy with Epilepsy Scotland’s Allana Parker, promoting Epilepsy  week in the Scottish Parliament. Cathy had her own personal tale to tell about epilepsy, having been diagnosed last year.

“My involvement with epilepsy groups became very personal a year or so ago, when I was diagnosed with epilepsy. I have seen first hand the quality of care that is available, but I am also aware that, for example, an increase in the number of dedicated epilepsy nurses would help people manage their condition and get on with their lives.

“Epilepsy takes many different forms, and is more common than many people imagine. There is a stigma attached to it. When I tell folk, some ignore it and talk about the weather while others make a fuss. It should just be accepted as a common disorder that needs to be treated – it affects nearly one per cent of the population.

“Since I began my treatment, I haven’t had any recurrence – fingers crossed. I am very grateful to the NHS staff who have helped me. It has given me an added incentive to make sure that people get the quality of treatment they deserve and need, not just for epilepsy, but also for diabetes, asthma and other conditions where better support – for example from specialist nursing and self-management training – could bring dividends not only for the health of sufferers, but also in turn deliver wider benefits to the NHS.”

Call for more Epilepsy nurses

Falkirk East MSP Cathy Peattie has called on the Scottish Government to increase the number of specialist epilepsy nurses employed in the national health service.

“Scotland needs more specialist epilepsy nurses,” said Cathy.

“The Joint Epilepsy Council has recommended one nurse per 100,000 of the population. Yet as the Minister acknowledged when I raised the issue in parliament, there are only 24 epilepsy specialist nurses in Scotland – 11 for adults, seven for children and six for people with learning disabilities.

Specialist nurses are senior nurses who provide a wide range of services. Epilepsy Scotland, which campaigns for the 40,000 people affected by the condition, has highlighted that at the moment no health boards were meeting recommended targets for specialist nurses, and some patients had to travel to another health board to access the service.

Cathy said that “managing epilepsy can be difficult and epilepsy nurses provide excellent support. The Minister is pinning her hopes on new draft clinical standards on epilepsy. While these highlight the important role that epilepsy specialist nurses play in the provision of services, they recommend a managed clinical network approach. That’s fine so far as it goes, but is not a substitute for having adequate numbers of specialist nurses. We need two or three times as many as we have now.”